I take a lot of things for granted.

Having experienced such a tragic loss, I find it hard to be compassionate for others. I used to be full of compassion and now I am an unemotional robot.  Most of the time.

I seemed to have forgotten how easy my life really is.

I wake up in the morning feeling sorry for myself.  My son's father is dead. I work full-time and raise my son completely on my own with no financial support from anybody else.  I get extremely jealous when I see other "single mothers" striving because they still do have financial support from their children's father.

...and then I hear stories about children like Lexi Haas - a 10 year old girl who wakes up every morning with an infectious smile and is very much loved by her family and friends. Lexi Haas also has a condition called Kernicterus which was caused by jaundice when Lexi was just a baby. 

I had never heard of Kernicterus, in fact, when my son was born 8 years ago, he also had jaundice pretty badly.  I never really thought of it as a serious thing.  They took my baby, put him in an incubator and stuck funny little sunglasses to his face with Velcro.  I actually thought it was kind of cute.  I was never told of any potential complications that could arise from his condition.  I just took it all in and figured it was because they didn't want to send me home with a yellow baby. 

EVILBOY in his "tanning bed" - 2004

I've watched my son grow strong for eight years.  I've told him to stop running in the house, use an indoor voice and "stop talking so much" so many times.  I never imagined how life would be if he couldn't do those things. 

When she was just seven years old, Lexi was the first person in the world with Kernicterus to receive a Deep Brain Stimulator (DBS), a ten hour surgery for which most of it she was conscious for.  This brave little girl has come so far with the help of the DBS, but there are still follow-up surgeries needed to help this little girl live her life a little easier. 

Unfortunately, I am not in a position to help right now, but I can't stop thinking about how far this little girl has come and how easy my life is compared to hers. I am not financially able to help, so I figured the best way I could help is to spread the word.  

If you are in the position to help this family, or at least spread the word, please visit her donation site(linked below) or paste on your blog/Facebook/Twitter. 

Wishing you all the best Lexi and Haas family.  You are an inspiration.

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Hello..this is my blog. I bought this fancy theme and I don't know what to write here just yet. Maybe one day remind me I have to write something inspiring here?


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